“The shambles that is NHS England’s Care.data patient data sharing scheme suffered another blow this week as it is revealed that patient-level data was available publicly online.
“Ben Goldacre has tweeted that Hospital Episode Statistics (HES) — the psuedonymised data collected about patients when they visit hospital, which includes patient age, gender, ethnicity, diagnoses, operations, time waited etc — were made available publicly in an online tool created by a mapping company called Earthware.”
However, at the bottom of the article:
“Updated 20:40 03/03/2014: Earthware UK has issued a statement saying the data it used was mock HES data, not real patient data.”
Earthware UK say in that statement that:
- The map displayed mock data held by a third party who provided this data to Earthware via a web API
- We do not hold nor have we ever held HES data on our servers
- No patient identifiable data was ever displayed on the map
So, something or nothing? Can’t tell.
More on care:data
- Care:crash http://www.foiman.com/archives/1006
- The NHS plan to share our medical data can save lives – but must be done right http://www.theguardian.com/society/2014/feb/21/nhs-plan-share-medical-data-save-lives
- Hospital records of all NHS patients sold to insurers http://www.telegraph.co.uk/health/healthnews/10656893/Hospital-records-of-all-NHS-patients-sold-to-insurers.html