Tinnitus is a strange thing — invisible and, to everyone else at least, silent. That’s the one thing it takes away from us, though. Today is the first day of Tinnitus Week 2021, and the theme this year is #ThisIsMySilence.
#ThisIsMySilence – British Tinnitus Association
As a hidden condition, people without tinnitus do not truly understand the huge impact it can have on someone’s life: on the ability to get a peaceful night’s sleep, to concentrate, or just to enjoy silence. Tinnitus can and does have a huge impact on mental health and we need your help to make more people aware of this. The more we show the real impact tinnitus has, the more likely we are to be successful in making tinnitus research funding an urgent priority.
British Tinnitus Association presents #ThisIsMySilence – YouTube
For people living with tinnitus, there is no silence. As a hidden condition, people without tinnitus do not truly understand the huge impact it can have on someone’s life: on the ability to get a peaceful night’s sleep, to concentrate, or to just enjoy silence.
If you need support with your tinnitus, contact us for information, advice and an understanding ear. Monday to Friday, 9am to 5pm: Freephone: 0800 018 0527, Web chat: tinnitus.org.uk, Email: firstname.lastname@example.org, Text/SMS: 07537 416841
Their latest report, looking into the patient journey and how referrals are managed (or not), makes for interesting reading.
This is my silence: Please listen – Three steps that must be taken to improve the tinnitus patient journey – British Tinnitus Association
It was identified in the report that there has been a 22% drop in the number of tinnitus patients offered a referral to specialist care by their GP since March 2020 – despite a climb in cases, links with anxiety and depression, and new National Institute for Health and Care Excellence (NICE) guidance emphasising the importance of referrals.
There’s no cure for tinnitus yet, but that hasn’t stopped people claiming otherwise, with their ear candles and electroacupuncture. Some of these, such as ginkgo biloba and laser therapy, are positively harmful.
Examining tinnitus treatments – British Tinnitus Association
Some of the information you read will be about effective, evidence-based treatments. And some will be about treatments which haven’t even been tested. There may even be suggestions you try treatments that are dangerous. This page lists a number of treatments and gives our verdict on them.
The only one that can actually show evidence that it’s effective is cognitive behaviour therapy, or CBT. Back in July, I mentioned a couple of studies that were investigating the use of iCBT chatbot apps to help with tinnitus. I got involved with one of them, and I’m really glad to see it being rolled out to a wider audience.
Tinnitus support in your pocket – British Tinnitus Association
We are very excited to be supporting the pre-release of Tinnibot, the first virtual coach which provides psychological support to tinnitus sufferers using evidence-based techniques including cognitive behavioural therapy (CBT), mindfulness and sound therapy.
The app has an eight-week programme covering four categories: Knowledge is Power, Changing Perception, Relax and Meditate and Sleep Better. Tinnibot employs a range of CBT techniques including framing and reframing, goal setting, action planning and in the future, social support.
I certainly feel much more optimistic about it than this other approach I was reading about, “combining sound and electrical stimulation of the tongue.”
New research could help millions who suffer from ‘ringing in the ears’ – University of Minnesota
The tinnitus treatment device used in the study, now branded as Lenire®, was developed by Neuromod Devices and consists of wireless (Bluetooth®) headphones that deliver sequences of audio tones layered with wideband noise to both ears, combined with electrical stimulation pulses delivered to 32 electrodes on the tip of the tongue by a proprietary device trademarked as Tonguetip®. The timing, intensity, and delivery of the stimuli are controlled by an easy-to-use handheld controller that each participant is trained to operate. Before using the treatment for the first time, the device is configured to the patient’s hearing profile and optimized to the patient’s sensitivity level for tongue stimulation.
I think I’d rather have an ear candle!
This is not an easy time to be living through, but perhaps spending more time on your phone could help. Did you know that the NHS has an app library, full of health-related NHS-tested apps? There’s a mental health section, with apps dealing with all sorts of issues from stress, anxiety and panic attacks, to insomnia and self-harm and more.
Can apps help you manage your mental health during the coronavirus pandemic? – Patient
“This is a time of great unrest and financial anxiety and some people may not feel confident or able to enter into the commitment of more traditional modes of therapy when their lives feel so up in the air,” she says. “The cost and upkeep of a therapy relationship on balance may only add to anxieties rather than resolve them, so an app may be a useful short-term intervention until they can access the right avenue of support.”
Are iCBT chatbots helpful for tinnitus? – British Tinnitus Association
Two studies are investigating a new iCBT smartphone application that has been developed by Fabrice Brady, the Co-Founder at Hearing Power and Dr James Jackson, at Leeds Trinity University, to help reduce tinnitus related distress.
Tinnitus remedies and relief – Take on tinnitus
One in eight people suffer from tinnitus and experience a ringing in the ears or buzzing in the ears. There are lots of promises of tinnitus remedies, treatments and cures online. Take on tinnitus is designed to help you better understand tinnitus and offer practical ways that could help to relieve your tinnitus.
A few days after that post on tinnitus, this Quartz Obsession email arrived in my inbox, all about white noise. Apparently white noise technology is big business now, as more and more of us get increasingly fed up with noise pollution and are seeking a way out.
White noise – Quartz
The business of white noise has been commodified and packaged as a path to “silence” in a noisy world. Therapists and attorneys place white noise machines outside their office doors, like tiny privacy sentries. Parents clip white noise machines masquerading as cuddly lambs and owls to car seats and cribs to soothe babies to sleep. Apps offer personalizable white noise soundtracks.
As the world gets louder and noise pollution scales to what some claim as a public health crisis, white noise technology is facing a demand like never before, and business is quietly booming.
I hadn’t realised how much it can help with tinnitus, though.
Tinnitus is a chronic condition associated with the misfiring of neurons damaged by high excessive noise-exposure that leads to hearing phantom sounds. People affected by extreme noise are also more likely to develop dementia, anxiety, and have their learning ability impaired, suggesting sound exposure may have even wider neural effects. White noise is being pitched as one of the solutions to the problem. Research backed up by studies done on mice suggests low-level noise can reduce symptoms of tinnitus, and has become a recommended treatment method.
And it can come in all sorts of flavours, too.
Colored noise, and how it can help you focus – YouTube
Colors like white, pink and brown aren’t just for clouds, flowers and cows! They also describe special sounds that can actually help you focus and sleep!
But let one of my favourite authors have the last word.
The sky above the port was the color of television, tuned to a dead channel.William Gibson, Neuromancer
It’s been there since my teenage years, I think. But this last year, it’s really been making its presence felt.
Tinnitus is when you can hear sounds inside your head that are created by your hearing system, not your environment. It could be a ringing, humming, pulsing or hissing. It is more prominent in quiet areas or at nighttime. … You can’t turn it off or move away from it, so it can be spectacularly annoying.
I think mine’s something like Tone 5 in this video of examples — very high pitched. The thought that the ringing will never, ever stop feels more stressful than the ringing itself, sometimes. Is this going to get worse?
Does tinnitus lead to hearing loss?
Even though tinnitus can’t be cured, there is still lots you can do to help with your symptoms. It’s important to understand that with rare exceptions, tinnitus isn’t caused by a serious condition and doesn’t lead to other symptoms. It certainly isn’t because you’re going mad. Nor is it going to keep on getting worse – in fact, it often gets less noticeable over time.
I’m not the only one with this problem.
White Noise – Tinnitus Radio Documentary
What happens when sounds exist inside your head? How do you cope with an internal soundtrack from which you can’t escape and only you can hear? These questions are explored in White Noise, a new Documentary On One production that investigates the mysterious world of people who suffer from tinnitus and the impact it has on their lives.
A fascinating, moving, award-winning documentary, full of people trying their best with this, created by someone who knows what she’s talking about.
Living with tinnitus – Documentary On One
I was prompted to make this documentary when I was diagnosed with tinnitus myself. About two years ago, I noticed an intermittent sound in my head that, over time, became a constant presence. You’ll hear tinnitus sufferers talk about ‘their sound’ and mine resembles stormtrooper boots marching on loose gravel, if you can imagine that. Then I began to wonder who else had it, and how do they cope with it on a day-to-day basis.
Will there ever be a cure?
Tinnitus: why it’s still such a mystery to science
It’s estimated that 30% of people worldwide will experience tinnitus at some point in their life. This number is likely to rise, as increases in life expectancy and exposure to loud music are all reasons people develop tinnitus. But while it’s more important now than ever to find a cure for this condition which is likely to become more common, researchers still struggle to find one because of how complex tinnitus is.
There seems to be no lack of research going on, though.
Tinnitus Week 2019
The positive take away from this, Dr. Aazh concludes, is that there are a number or rehabilitative approaches such as Cognitive Behavioural Therapy, that can help a patient reduce their annoyance and the emotional distress caused by tinnitus, thus reducing the perceived volume of the tinnitus. This is something many people can achieve.
In the meantime, I should start following this advice from the British Tinnitus Association, and r e l a x .
The beauty and strength of the breathing exercises are that you can do them anywhere and at any time – standing, walking, sitting or lying down. They can be extended and control of the abdominal muscles can be introduced and combined with breath control. You can find more breathing exercises in books on stress management, relaxation, yoga, etc. so take an interest in learning to control your breath. Making breathing exercises a routine will allow you to see “letting go” as a first resort, not a last resort, in times of stress.
Here’s another take on that.
What being a tinnitus sufferer has taught me about silence
The only thing I can liken it to is when you own a refrigerator that hums, it’s really annoying and at first it’s all you can hear, but then as you live with it for a while your brain learns to tune it out – because it’s irrelevant noise. I’ve tried all kinds of ‘remedies’, I even got referred to the audiologist and had a full check up but no source for the tinnitus was found. The last thing the audiologist said to me when I left was “just try and forget it” – that’s pretty lame advice coming from a medical practitioner, but he was right actually. There is no known cure for tinnitus and the cause of mine is still unexplained, but sure enough things did get easier when I gave up trying so desperately to solve it, because the more attention you give to a sound the more prominent it will become.
I see his point in theory, but …